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This topic contains 25 replies, has 0 voices, and was last updated by Krissy Krissy 5 years, 8 months ago.

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  • #4417
    Krissy
    Krissy
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      No reason, except being lazy. I have RA and Lupus and sometimes get to feeling yucky! I am so ready for warm weather, which we have had the last few days, and it has been wonderful. I am so ready for a nice hot summer!

      #161154

      Snagg1
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        Ahh hope you feel better soon. I have been in a slump too. We need some sun. it has been raining last couple days.

        #161155
        Krissy
        Krissy
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          Thank you! I am seeing my Rheumy tomorrow and am asking for the meds I used to be on. She had me do Rituxan chemo treatments in Dec and they are not helping. I want my Humira injections back.

          #161156

          Snagg1
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            I know many people with same problem. I feel for you. One friend also had scleraderma ontop of other 2 conditions.

            #161157

            My mom has Lupus… I feel for 'ya!

            #161158

            Snagg1
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              Have a safe trip and I hope Dr appt goes well.

              #161159
              Krissy
              Krissy
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                I hope you feeling better soon, good to see your going to the Doctor for some help. I know how it is to have yucky days as I have MS and those days come around a lot. Sending big {{{hugs}}} to feel better!

                #161153
                Krissy
                Krissy
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                  Sending hugs and prayers!!!

                  Hope you have more good days than bad…. 🙂

                  #161160
                  Krissy
                  Krissy
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                    Jeez Barbara, that really sucks. I hope you are able to get back on the injections. Feel better soon!

                    #161161
                    Krissy
                    Krissy
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                      Barbara & Steph I am sending prayers that you will get the help you need and that they find a cure for these conditions

                      #161162
                      Krissy
                      Krissy
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                        Thanks ladies! I just got back. She is putting me on Orencia. I have to get an infusion of Orencia in April and then start on Orencia shots every week. If it works like Humira, I will be feeling great again. She took me off the Humira because it was aggravating my lupus, but I was ready to deal with it if it meant it would keep the RA under control. So keeping my fingers crossed that this will work.

                        #161163

                        Snagg1
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                          Crossing fingers and toes Barbara!!!

                          #161164
                          Krissy
                          Krissy
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                            Thanks! Right now I am going back on prednisone. Watch out, I get really moody!!! LOL!

                            #161165
                            Krissy
                            Krissy
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                              Crossing fingers and toes Barbara!!!

                              Me too Barbara! If the sunshine is making you feel better, get outside and SOAK it in while you're waiting for the medicine to work!

                              #161166
                              Krissy
                              Krissy
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                                Thanks! Right now I am going back on prednisone. Watch out, I get really moody!!! LOL!

                                *laughing* Yes, prednisone has some interesting side effects. I was on it for 8 years to combat an autoimmune disease called Sarcoidosis. If nothing else, I would get a huge surge of energy when I'd start up on it … felt like Superwoman for awhile! Good luck and good health!

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